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©Copyright 2001 Rogers Media. The following article first appeared in the December 2001 edition of BENEFITS CANADA magazine.

On a need-to-know basis

Ottawa's new privacy legislation gives employers a lot less information to manage disability. You'll also have to be more careful with the information you do have.
By Don Bisch
add-xml-space: no When an employee is absent from work, it's in the employer's best interests to facilitate an early return to the workplace. Many employers have relied on specific details about an employee's condition to put tailored strategies in place to support that process.

Under the new federal privacy legislation--which, starting next month, governs the collection, use and disclosure of personal health information--these employers may be in for a shock. Much of that information will no longer be available to them.

"What's causing [some employers] concern with the privacy legislation is that it's now becoming obvious that they have no absolute right to all of the details," says Keith Golem, vice-president, group insurance, disability management with Clarica in Waterloo, Ont. For the information employers still receive, there will be stricter guidelines about how they use, store and share the data. For many, the new rules will mean a careful new look at disability processes, and in some cases, serious changes.

The Personal Information Protection and Electronic Documents Act (formerly Bill C-6) came into effect last January for federally regulated organizations. It will apply to all other organizations as of 2004, unless the provinces they operate in have introduced similar privacy legislation. Quebec, for example, already has its own privacy law in place.

The section of the Act dealing with health information doesn't come into effect until Jan. 1, 2002, and, once again, it is only applicable to federally regulated employers. However, insurers--the parties that manage the information in most cases--are complying now. So the flow of data to plan sponsors has already ceased for some plan sponsors.

The Act defines personal health information as information concerning "the personal, physical or mental health of the individual" or "any health service provided to the individual." Even information collected "in the course of providing health services" falls under the Act.

"The drafting of this statute is quite broad. In many important areas it's vague," says Hugh O'Reilly, a partner in the Toronto office of the international law firm, Torys. "If you're talking about an insured benefit product, whether it's an administration-services only product or an insured product, it's potentially caught there."

The problem with the legislation, says O'Reilly, is that it is based on Canadian Standards Association guidelines that were never intended to be made into law. "This was a national standard of privacy guidelines put together by various industry players probably in a desire to show that they were good corporate citizens. There's no way on earth that those people thought these would be the regulations."

Golem says Clarica is still providing plan sponsors with information that is "necessary for the employer to effect a safe and timely return to work." He adds that when employees sign a claims form, they authorize the insurer to share information pertinent to their absence and ability to return to work with the plan sponsor. This means information about when an employee can be expected to return to work and his or her functional limitations can be passed on--but not specific details about the nature of the condition.

"[The employee] would not expect us to share things like diagnostic information and treatment information in the context of managing their claim because, quite honestly, it's not necessary," says Golem. Many employers do believe that they need this type of information. "When they think of that [information] going away, they suddenly think they don't have all the tools. But I think they still have all the tools they need," he says.

NO NEED TO SHARE
Anne Nicoll, a practice leader of managed time loss at William M. Mercer in Toronto, agrees that confidential medical information--including diagnosis and treatment--isn't something an employer needs to effectively manage a disability. Nicoll adds that other information, such as the employee's abilities and capacities, is crucial to disability management. "That information has a different purpose. There's a need for sharing it because that's what's used to identify return-to-work opportunities, accommodation needs and so on."

While information about functional abilities and limitations may be enough to manage individual disability cases, it may not be enough to identify and target any recurring health problems. Employers need specific information about illnesses and injuries to identify causes and trends, develop targeted prevention programs and measure wellness initiatives.

Insurers say they will still be able to provide information about specific diagnoses--albeit in aggregated form--under the new legislation. "We don't see a problem with aggregated data, so that you can't identify individuals," says Mike Sampson, vice-president of group marketing at Great-West Life Assurance Co. in Winnipeg. He adds that his company is careful about reports it provides to smaller clients because, in some cases, it's easier to identify individuals.

INFORMATION ON CONSENT
Not everyone agrees that anonymous aggregate data is enough. "If you're doing something in your business that's causing disability, whether that be mental or physical, I don't know that you're going to get it on a general overall basis," says Barry Entwistle, vice-president, Comprehensive Benefits Solutions in Toronto. "If you have a major [health] problem in your organization, how do you fix it without knowing that Sally is suffering these conditions? What does your third party do? Simply advise the company that they should have a general overall program?"

Entwistle adds that if employers only receive aggregate data, it could also hinder their ability to link instances of disability in the workplace with the use of other benefits, such as prescription drugs. For those employers that feel they do need details about a claimant's condition or treatment to effectively manage disability, there is an option available to them. The legislation allows for personal health information to be shared, so long as the claimant consents to having it released, with a clear understanding of who will see it and how it will be used.

Nicoll points out that some employers already have their own consent forms in place. "Ensuring that [the form] is specific in terms of why [the information] is being collected, who's going to get it and what kinds of information, is really the first step."

Handling personal health information under the new legislation can be a potential minefield, and employers must put stringent measures in place to ensure their employees' privacy is protected. Shelley Ptolemy knows this. She is the senior occupational health adviser for the City of Medicine Hat in Alberta, which administers its own short-term disability benefits. The City collects disability claimants' personal health information itself, and it has had to put its own consent and information handling processes in place.

When one of the City's employees applies for disability, they are asked to sign a form allowing their physician to release medical information to one of the City's two occupational health advisers.

The consent forms provided to employees claiming disability are quite specific, clearly spelling out who the information will be shared with, what it will be used for and the time frame to which the consent applies. It also states that only medical information related to the condition for which the employee is currently being treated will be released.

Once that information is obtained, it is secured in a totally different manner than all other data housed in the City's human resources department. "It is contained in a locked office, in a double-locked file cabinet," says Ptolemy.

"Anything on the software system is triple-coded with passwords and then everyone who has access to that information must sign an annual waiver signifying that they have reviewed the confidentiality practice." She adds that staff members have a copy of the confidentiality policy so that they know and understand it.

Complying with the privacy legislation is even more difficult for employers that do not have an in-house occupational health professional. Because of all the safeguards required to ensure compliance, Ptolemy believes many of these organizations may now decide to outsource the disability management function to a third party. "There's nothing wrong with that decision as long as you clearly understand that you've just given some of your control away."

Nicoll agrees that outsourcing may be the best bet for some employers who are currently self-insured. "Some of the smaller and medium-sized employers have probably relied on forms they may have received from an insurer and are using them for their internal program." She adds that employers still have to help employees back to work. "The legislation is not an excuse to say 'it's not my problem.' It's still the employer's [responsibility]."

There is always potential for information about an employee's health to end up in the employer's hands. For instance, an employee may give a completed disability claim form directly to the human resources department. "The entry point for confidential health information is from the employee. The employee can be handing it to all kinds of different people," says Nicoll. She notes that handing someone a completed claim form or telling a supervisor about a medical condition, does not imply consent to release that information. For this reason, all employers will have to take a close look at how they handle and share information.

It's also important for employers to communicate their policy about handling personal health information, says Entwistle. "Even if you are [complying] with the legislation, let people know what you're doing. Whatever you do, communicate." BC

Don Bisch is managing editor of Canadian Healthcare Manager, a sister publication of Benefits Canada. dbisch@rmpublishing.com.

The consequences of non-compliance

Canada's privacy commissioner is watching you. Here's how Ottawa will ensure you comply with its new privacy legislation.

The privacy commissioner of Canada is responsible for ensuring compliance with the Personal Information Protection and Electronic Documents Act. The commissioner has five avenues to ensure that organizations subject to the Act adhere to its principles: investigate complaints; mediate and conciliate complaints; audit personal information management practices; publicly report abuses; and seek remedies in court.

Investigations
When investigating complaints, the commissioner has the power to summon witnesses, administer oaths and compel the production of evidence. As well, the commissioner may make public any information relating to the personal information management practices of an organization if the commissioner considers that it is in the public interest.

Application to the Federal Court
Once the investigation has taken place and the commissioner has issued a report on the findings, a complainant may apply to the Federal Court for a hearing, or the privacy commissioner may apply on his own or on a complainant's behalf. The Federal Court may: order an organization to correct practices that do not comply with the Act; order an organization to publish a notice of any action taken or proposed to correct its practices; or award damages to a complainant, including damages for humiliation. There is no ceiling on monetary damages that the Court may award.

Audits
The privacy commissioner may, with reasonable grounds, audit the personal information management practices of an organization.

Source: The Office of the Privacy Commissioner of Canada























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