Keyword: rare diseases

24 results found

In 2020, members of the Canadian Life and Health Insurance Association spent $650 million on drugs for rare diseases for more than 13,000 patients. Rare diseases affect one in 12 Canadians and between 6,000 and 8,000 rare diseases are known globally. In addition, roughly 80 per cent of these diseases occur in children and only […]

The Canadian Drug Insurance Pooling Corp.’s high-cost drug framework provided coverage to almost 28,000 Canadians and their families where drug costs exceeded $10,000 annually in 2020. According to its results, the CDIPC estimated that its member insurance companies reimbursed claims associated with 54 new high-cost drugs including those for rare diseases. As well, based on past experience, […]

  • By: Staff
  • December 22, 2021 December 21, 2021
  • 09:00

The proposed amendments to the patented medicines regulations by the Patented Medicine Prices Review Board could have a big impact on both the group insurance and pharmaceutical industry. “The CLHIA is very supportive of PMPRB adjustments that may be coming,” said Joan Weir, director of health and disability policy at the Canadian Life and Health […]

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Discussion around implementing a national universal pharmacare strategy is growing louder ahead of next month’s federal election. In its 2019 budget, the federal government said it would work with partners to move forward on a national pharmacare program, including the creation of a new national drug agency and formulary, as well as a national strategy for […]